Resources

  • Ehlers-Danlos, Marfan and Related CTDs New England/MA Support Group

    https://www.facebook.com/groups/211190148990266

    Central MA EDS support group

    https://www.facebook.com/groups/593355240822823

    Many support groups listed on the Connective Tissue Coalition page

    https://www.connectivetissuecoalition.org/support-groups

  • Connective Tissue Coalition

    www.connectivetissuecoalition.org

    EDS and CTD NE/MA Support Group

    www.ctdnewengland.org

  • Disjointed

    https://www.amazon.com/Disjointed-Navigating-hypermobile-Ehlers-Danlos-Hypermobility/dp/1734794909

    Living Life to the Fullest with Ehlers Danlos Syndrome

    https://www.amazon.com/Living-Life-Fullest-Ehlers-Danlos-Syndrome/dp/1478758880